I find myself writing to you and I really dont know much about your illness, we have just returned from the hospital after seeing our granson Corey (9 weeks) who was taken in today with fluid on the brain and as at this stage they are saying he has a cyst about the size of a golf ball at the back of his head. They want to do some test before they operate, we dont understand or know yet what is happening, we can only pray, I would like to say Thank you, and I hope one day soon we can feel as you do God Bless

Good Luck! What kind of treatment did she receive? My son, Jessee, has an anaplastic astrocytoma. He is 24.

We came across your web page and found it very interesting. I`m glad to know you made it through everything and that you are willing to share your story with others. Thanx, Kera&Kristie

Dear Kirra Almost two and a half years ago , i found your site for the first time. My son Connor had just been diagnosed with a low grade astrocytoma on his Cerebellum. Connor is turning five next month and other than the scar on the back of his head you would never even know what he went through. He is strong, very healthy and bright. In fact I am constantly telling him to slow down since he is such a wild and happy boy. I still worry about him and the fear of the tumor returning never leaves me but every time I look at him I realise how blessed I am to have him with me still. Kirra - stay healthly. I feel a real connection with you and your family. Love Vicki Renton mom of Connor - Brain tumour survivor!

Thank you for having this site. On July 9, 2002, my 5 year old cousin was found to have a tumor which involved over half of the cerebellum. She is scheduled for surgery in the morning, and it during a sleepless night that I sit at the computer searching for information.

my daughter had the same five years ago but is doing fine all the best love merlynn roy and kelly (WE WOULD BE HAPPY TO RECIEVE EMAIL)

I am glad to see a "positive" web page on the subject of brain tumors. I also could not find anything written for a "survivor. I was 46 years old, had a demanding job, three children, a sports car and ALOT of headaches when an MRI showed a tumor. I had an astrocytoma removed in February 2001 and have had a long, slow recovery. I started off in a wheelchair, then a walker, then used a cane. Now I walk on my own and am going through remedial classes in typing and clerical skills to try to find a job. I did `t drive for several months, partially because I was taking so many drugs. My prognosis is good but I feel like a time-bomb afraid that another tumor would show up or I would have a seizure. So far, so good. Best wishes to Kirra. Please keep me posted.

Dear Kirra, Hi, my name is Justin. When I was 9, I had a brain tumor very simular to yours. And now 12 years later I`m alive and doing well. My doctors have completely released me now. Although I did have some what of a scare last year. Lucky for me it was just the fact that I had outgrown my old shunt. But as for now I am fine. As I Hope you are fine. And will continue to be! Well gotta go. Hope to hear fome you. Justin and Joni Turner

To Kirra, I`m happy to hear that you are doing well now, I felt sad everytime I think of my nephew who`s 15 months old, diagnosed with celebral palsy, unfortunately he can`t go on with the treatment because of financial problem, To anyone who read this, let`s pray for him to find people who`s willing to help him.

hi darling my heart goes out to you and all those who suffer from tumors i have recently discovered i have a brain tumor and my life life is upside down and to those who cant judge us please dont chrisxx

I hope you are doing well kirra I have a little 8 year old who also has a astrocytomas so I know what you are going through we will pray for you as well hang in there shawn and mom kathy>

to kirra and her family, we are very happy to hear that you are doing well. our son, who is 9, was diagnosed with a DNET on the 29 of april,2002 he had surgery on may 1,2002. he is doing well. our prayers are with you. j5

was just told by dr. that he thought there was something wrong with cerebellum was trying to find out more about what it is etc.

Hi it is me again... I just thought i`d post to say the docotors have finaly decied to operate on the first of july giving me less than 2 weeks notice. Even thought the doctoros have said it is impossible to operate. I am just being to start to get a bit scared now! Thnaks again to this site it has been a great help From dan age 12!

What a great page for those going through similar situations, or who have had a brain tumor. I was diagnosed in 1988, when I was 12,with an astrocytoma in the cerebellum. The fist-sized tumor was pressing on optic and balance nerves, so I was in bad shape. It was removed within the last 12 hours before it would have ruptured. I ended up with a blood clot and my head was opened up twice, and all my hair was shaved. I now wear my hair to my bum, since I know how it feels to be a bald girl in school and everyone making fun of me. Childhood astrocytomas VERY RARELY reoccur, (I wrote a research paper on this) so Kirra has nothing to worry about! I was "cleared" after 1996, but I recently had another MRI last month because I am having more headaches and vision problems. Everything looks fine still!! I am lucky enough to live near the best Neurological unit in the States at Henry Ford Hospital in Detroit, Michigan. If anyone in the States is in need of a Dr., you can go to the hospitals website. I`ve attached a pic of my hair, that I just can`t bare to cut!

I had a brain hemmorage sept.99 .I was 29 when this happened,I am still in rehab. I have a wife and 3 kids.Give Kirra a hug for me.Ritch

Hi kirra, i`m so glad to hear that you are ok i`m a mum with a premature babie who was born 14 weeks early but his little friend that is at the NICunit with him has a cerebellum problem too but his is very different to yours his stopped growing so he is struggling alot he was a very early baby too his name is Dillon I am definatley going to tell his mum to visit your site as she is probably as worried as what your mum was with you if you could send me so web site adresses on the cerebellum i`m sure she would be most grateful Thank you mrs galati

my sister has had her brain tumor for 6 years her doctor would crack her neck said that it was all she needed know she has a very large tumor ,, this is so sad,,, it could have been removed years ago.. i dont know the out come.. jdstable*aol.com

i really don`t know what to say as we just recently found out that our 4 year old daughter has a brain tumor and will be going through a lot more tests and your site has been a great deal of help since i`ve been trying to understand and deal with it all. I thank you for all the info and i am really happy to hear that kirra is doing so well. this site is wonderful and very informative. thanks again :)

What a wonderful site, I have a grade 2-3 astro, although I`m an adult I can relate to so much of Kirra`s story. Fantastic thats shes doing well. All the best to you from Australia.

My best friend has a brian tumor. I am not sure what kind but it is on her forehead you can`t see it but it`s there. She is 16 and was tested for cancer and lucemea. She is very happy to hear that she has nither. It was kind of scary there for awhile. Thanks, Amy